Who Is Responsible for Promoting Equity in Rare Disease Research?

American Journal of Bioethics 23 (7):83-85 (2023)
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Abstract

Stories of rare disease advocacy can elicit strong but ambivalent responses. It’s moving to read about the heroic efforts of parents “becoming drug developers to find a cure for their children’s ra...

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10.1080/15265161.2023.2207512

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