“Consent Does Not Scale”: Laying Out the Tensions in Balancing Patient Autonomy with Public Benefit in Commercializing Biospecimens

Journal of Law, Medicine and Ethics 51 (2):437-439 (2023)
  Copy   BIBTEX

Abstract

This article has no associated abstract. (fix it)

Categories

Keywords

Reprint years

DOI

10.1017/jme.2023.74

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 92,682

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

My notes

Similar books and articles

A survey of patient perspectives on the research use of health information and biospecimens.Stacey A. Page, Kiran Pohar Manhas & Daniel A. Muruve - 2016 - BMC Medical Ethics 17 (1):48.
Conscience, Courage, and “Consent”.Mark A. Hall & Nancy M. P. King - 2016 - Hastings Center Report 46 (2):30-32.
Broadening consent--and diluting ethics?B. Hofmann - 2009 - Journal of Medical Ethics 35 (2):125-129.
Can Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research.Lauren C. Milner & David Magnus - 2013 - American Journal of Bioethics 13 (4):1 - 2.
Confronting Biospecimen Exceptionalism in Proposed Revisions to the Common Rule.Holly Fernandez Lynch, Barbara E. Bierer & I. Glenn Cohen - 2016 - Hastings Center Report 46 (1):4-5.
Organoid Biobanking, Autonomy and the Limits of Consent.Jonathan Lewis & Søren Holm - 2022 - Bioethics 36 (7):742-756.
Broad Consent for Future Research: International Perspectives.Mark A. Rothstein, Heather L. Harrell, Katie M. Saulnier, Edward S. Dove, Chien Te Fan, Tzu-Hsun Hung, Obiajulu Nnamuchi, Alexandra Obadia, Gil Siegal & Bartha Maria Knoppers - 2018 - IRB: Ethics & Human Research 40 (6):7-12.
Patient perspectives on research use of residual biospecimens and health information: On the necessity of obtaining societal consent by creating a governance structure based on value-sharing.Mayumi Yamanaka, Mika Suzuki & Keiko Sato - 2021 - Research Ethics 17 (1):103-119.
Reconsidering the value of consent in biobank research.Judy Allen & Beverley Mcnamara - 2011 - Bioethics 25 (3):155-166.
Biobanks--When is Re-consent Necessary?K. S. Steinsbekk & B. Solberg - 2011 - Public Health Ethics 4 (3):236-250.
Autonomy is a Right, Not a Feat: How Theoretical Misconceptions have Muddled the Debate on Dynamic Consent to Biobank Research.Linus Johnsson & Stefan Eriksson - 2016 - Bioethics 30 (7):471-478.
The Right to Withdraw Consent to Research on Biobank Samples.Gert Helgesson & Linus Johnsson - 2005 - Medicine, Health Care and Philosophy 8 (3):315-321.
Implementing Regulatory Broad Consent Under the Revised Common Rule: Clarifying Key Points and the Need for Evidence.Holly Fernandez Lynch, Leslie E. Wolf & Mark Barnes - 2019 - Journal of Law, Medicine and Ethics 47 (2):213-231.
Human Tissue Samples and Ethics: – Attitudes of the General Public in Sweden to Biobank Research.Tore Nilstun & Göran Hermerén - 2005 - Medicine, Health Care and Philosophy 9 (1):81-86.
The ethics of biobanking: Assessing the right to control problem for broad consent.Neil C. Manson - 2019 - Bioethics 33 (5):540-549.

Analytics

Added to PP
2023-09-02

Downloads
6 (#1,476,313)

6 months
5 (#693,173)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

No references found.

Add more references