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Challenges in biobank governance in Sub-Saharan Africa
BMC Medical Ethics 14 (1):35 (2013)
Abstract
Biological sample and data transfer within and out of Africa is steeped in controversy With the H3Africa project now aiming to establish biobanks in Africa, it is essential that there are ethical and legal governance structures in place to oversee the operation of these biobanks. Such governance is essential to ensuring that donors are protected, that cultural perspectives are respected and that researchers have a ready availability of ethically sourced biological samplesLinks
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Citations of this work
Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.Jantina de Vries, Syntia Nchangwi Munung, Alice Matimba, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Ciara Staunton, Aminu Yakubu & Paulina Tindana - 2017 - BMC Medical Ethics 18 (1):1-9.
Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.Nchangwi Syntia Munung, Patricia Marshall, Megan Campbell, Katherine Littler, Francis Masiye, Odile Ouwe-Missi-Oukem-Boyer, Janet Seeley, D. J. Stein, Paulina Tindana & Jantina de Vries - 2016 - Journal of Medical Ethics 42 (2):132-137.
“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.Keymanthri Moodley & Shenuka Singh - 2016 - BMC Medical Ethics 17 (1):57.
A scoping review of genetics and genomics research ethics policies and guidelines for Africa.Joseph Ochieng, Nelson K. Sewankambo, John Barugahare, Betty Kwagala, Juli M. Bollinger, Erisa Mwaka, Betty Cohn & Joseph Ali - 2021 - BMC Medical Ethics 22 (1):1-15.
References found in this work
“It’s my blood”: ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants.Keymanthri Moodley, Nomathemba Sibanda, Kelsey February & Theresa Rossouw - 2014 - BMC Medical Ethics 15 (1):4.
Coding and Consent: Moral Challenges of the Database Project in Iceland.Vilhjálmur Árnason - 2004 - Bioethics 18 (1):27-49.
Taking tissue seriously means taking communities seriously.Ross EG Upshur, James V. Lavery & Paulina O. Tindana - 2007 - BMC Medical Ethics 8 (1):11.
Qualitative study of knowledge and attitudes to biobanking among lay persons in Nigeria.Michael A. Igbe & Clement A. Adebamowo - 2012 - BMC Medical Ethics 13 (1):27-.
Informed Consent and Biobanks.Ellen Wright Clayton - 2005 - Journal of Law, Medicine and Ethics 33 (1):15-21.
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