Brain Data in Context: Are New Rights the Way to Mental and Brain Privacy?

American Journal of Bioethics Neuroscience:1-12 (2023)
  Copy   BIBTEX

Abstract

The potential to collect brain data more directly, with higher resolution, and in greater amounts has heightened worries about mental and brain privacy. In order to manage the risks to individuals posed by these privacy challenges, some have suggested codifying new privacy rights, including a right to “mental privacy.” In this paper, we consider these arguments and conclude that while neurotechnologies do raise significant privacy concerns, such concerns are—at least for now—no different from those raised by other well-understood data collection technologies, such as gene sequencing tools and online surveillance. To better understand the privacy stakes of brain data, we suggest the use of a conceptual framework from information ethics, Helen Nissenbaum’s “contextual integrity” theory. To illustrate the importance of context, we examine neurotechnologies and the information flows they produce in three familiar contexts—healthcare and medical research, criminal justice, and consumer marketing. We argue that by emphasizing what is distinct about brain privacy issues, rather than what they share with other data privacy concerns, risks weakening broader efforts to enact more robust privacy law and policy.

Similar books and articles

Data, Metadata, Mental Data? Privacy and the Extended Mind.Spyridon Orestis Palermos - 2023 - American Journal of Bioethics Neuroscience 14 (2):84-96.
Can Brain Imaging Breach Our Mental Privacy?Amihud Gilead - 2015 - Review of Philosophy and Psychology 6 (2):275-291.
Why privacy is not enough privacy in the context of “ubiquitous computing” and “big data”.Tobias Matzner - 2014 - Journal of Information, Communication and Ethics in Society 12 (2):93-106.
Protecting privacy interests in brain images : the limits of consent.Sarah J. L. Edwards - 2012 - In Sarah Richmond, Geraint Rees & Sarah J. L. Edwards (eds.), I know what you're thinking: brain imaging and mental privacy. Oxford: Oxford University Press.
Is Mental Privacy a Component of Personal Identity?Abel Wajnerman Paz - 2021 - Frontiers in Human Neuroscience 15:773441.
Regulating brain imaging : questions of privacy, informed consent, and human dignity.Roger Brownsword - 2012 - In Sarah Richmond, Geraint Rees & Sarah J. L. Edwards (eds.), I know what you're thinking: brain imaging and mental privacy. Oxford: Oxford University Press. pp. 223.

Analytics

Added to PP
2023-04-05

Downloads
806 (#19,313)

6 months
468 (#3,490)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Daniel Susser
Cornell University

Citations of this work

Moving Beyond Context: Reassessing Privacy Rights in the Neurotechnology Era.Callie Terris - 2024 - American Journal of Bioethics Neuroscience 15 (2):144-146.
Nissenbaum and Neurorights: The Jury is Still Out.Nina F. de Groot, Vera Tesink & Gerben Meynen - 2024 - American Journal of Bioethics Neuroscience 15 (2):136-138.
Brain Exceptionalism? Learning From the Past With an Eye Toward the Future.Eran Klein & Nicolae Morar - 2024 - American Journal of Bioethics Neuroscience 15 (2):139-141.

View all 10 citations / Add more citations