ObjectiveThis study aims to evaluate the effectiveness of the MotivAir program—a phone-based intervention based on Motivational Interviewing principles and techniques—in enhancing adherence to Continuous Positive Airway Pressure therapy among patients with Obstructive Sleep Apnea Syndrome.MethodsA multicenter randomized controlled trial design with random allocation at the level of the individual will be conducted to compare the impact of the experimental program with a control group receiving usual care only in improving selected clinical and psychological parameters in the patients. A minimum sample (...) of 80 participants will be recruited in each center according to the inclusion criteria. After the initial screening, participants will be randomly assigned to either the experimental group or the control condition. The program will last 180 days and will be delivered by a trained nurse. The impact of the MotivAir program on selected primary and secondary outcomes will be measured at baseline, and after 1-, 3-, and 6-month from CPAP initiation.DiscussionParticipants are expected to show an increased level of adherence to CPAP and to acquire the skills and self-confidence necessary to deal with the psychological consequences of their chronic condition. (shrink)

ObjectiveThis study aims to investigate the lived experience in patients with obstructive sleep apnea syndrome and comorbid obesity following after continuous positive airway pressure therapy made with the disease the device, and to identify barriers and facilitators to the use of CPAP to improve rehabilitation provision and aid in disease self-management.MethodsQualitative research was conducted using three focus groups with a representative sample of 32 inpatients undergoing a 1-month pulmonary rehabilitation program at the IRCSS Istituto Auxologico Italiano San Giuseppe Hospital, Verbania, (...) Italy. The focus groups were recorded on tape, and contemporaneous notes were made. The tapes were transcribed verbatim, and Interpretative Phenomenological Analysis was used to develop themes.ResultsSix main themes were extracted: Living the diagnosis as a shock; You should not sleep on it: the importance of prevention; The adjustment to CPAP; Barriers and facilitators to the use of CPAP; Three in a bed; and The relationship with the healthcare system.ConclusionResults of this study suggest potential avenues for interventions to increase adherence to CPAP, including the provision of information and continued support. Individual counseling providing strategies aimed at helping the person to cope with the emotional problem and relational difficulties associated with the use of CPAP, and at strengthening self-efficacy and self-management skills are also encouraged for optimal care during the rehabilitation program. (shrink)

In a challenge to current thinking about cognitive impairment, this book explores what it means to treat people with intellectual disabilities in an ethical manner.

Through a series of essays contributed by clinicians, medical historians, and prominent moral philosophers, Cognitive Disability and Its Challenge to Moral ...

I analyse here some histories of people who lived in concentration camps and told their experiences: De Gaulle Anthonioz (La Traversée de la nuit), Geoffroy (Au temps des crématoires…), Semprun (L’Écriture ou la vie). These histories represent the lives of survivors, but they are also a form of literary expression with a narrative structure that codifies a genre. More particularly, I focus the attention on the incipit, a strategic place in which some of the specific features of the global meaning (...) and structural organization of the whole text can be seized. My hypothesis is that in histories of survival, already in the incipit, the authors strive to convey the emblematic value of their history: an extreme and traumatic experience which is difficult to express. The analysis of these incipit shows that experiences related to concentration camps, to be expressed, need an elaborated message and that an artistic aim can contribute to the representation of these experiences. From the structural viewpoint, histories of survival amplify a dichotomy existing in several literary genres and currents: ‘external reference’ and ‘internal organization’, mimetic ‘truth’ and narrative ‘structure’, ‘reality’ and ‘convention’, ‘experience’ and ‘narration’. In my opinion, histories of survival solve theseoppositions by reconciling some contraries through the use of oxymora. Even narratives structures or key figures such as the author, the narrator, the observer, the witness and so on, tend to become oxymora. The study of these features (and combination) is pertinent for anthropology (by seizing facts thanks to elaborated ‘ways of uttering’ authors often redefine forms of humanity) and for semiotics (any form of expression, even if original, has to be collectively shared and based on a system of signs). In my opinion, a joint semiotic and anthropological approach can help analysing histories of survival as a ‘literary genre’ and as a ‘historical tragic phenomenon’. (shrink)

I analyse here some histories of people who lived in concentration camps and told their experiences: De Gaulle Anthonioz (La Traversée de la nuit), Geoffroy (Au temps des crématoires…), Semprun (L’Écriture ou la vie). These histories represent the lives of survivors, but they are also a form of literary expression with a narrative structure that codifies a genre. More particularly, I focus the attention on the incipit, a strategic place in which some of the specific features of the global meaning (...) and structural organization of the whole text can be seized. My hypothesis is that in histories of survival, already in the incipit, the authors strive to convey the emblematic value of their history: an extreme and traumatic experience which is difficult to express. The analysis of these incipit shows that experiences related to concentration camps, to be expressed, need an elaborated message and that an artistic aim can contribute to the representation of these experiences. From the structural viewpoint, histories of survival amplify a dichotomy existing in several literary genres and currents: ‘external reference’ and ‘internal organization’, mimetic ‘truth’ and narrative ‘structure’, ‘reality’ and ‘convention’, ‘experience’ and ‘narration’. In my opinion, histories of survival solve theseoppositions by reconciling some contraries through the use of oxymora. Even narratives structures or key figures such as the author, the narrator, the observer, the witness and so on, tend to become oxymora. The study of these features (and combination) is pertinent for anthropology (by seizing facts thanks to elaborated ‘ways of uttering’ authors often redefine forms of humanity) and for semiotics (any form of expression, even if original, has to be collectively shared and based on a system of signs). In my opinion, a joint semiotic and anthropological approach can help analysing histories of survival as a ‘literary genre’ and as a ‘historical tragic phenomenon’. (shrink)

This paper examines five groups of women that were instrumental in the emergence of the category of “feeblemindedness” in the United States. It analyzes the dynamics of oppression and power relations in the following five groups of women: “feebleminded” women, institutional caregivers, mothers, researchers, and reformists. Ultimately, I argue that a feminist analysis of the history of mental retardation is necessary to serve as a guide for future feminist work on cognitive disability.

This essay explores various philosophical approaches to cognitive disability within feminist philosophy. In doing so, it addresses three broad questions: What positive contributions can feminist philosophy make to the philosophy of cognitive disability? How have feminist philosophers critiqued the presence and absence of cognitive disability in philosophy? And what challenges does cognitive disability pose to feminist philosophy itself? The essay begins with definitions and models of disability and then turns to feminist work on cognitive disability in moral and political philosophy, (...) bioethics, and epistemology. It concludes with some methodological considerations. (shrink)

This essay explores various roles that philosophers occupy in relation to intellectual disability. In examining how philosophers define their object of inquiry as experts and gatekeepers, it raises critical questions concerning the nature of philosophical discourse about intellectual disability. It then goes on to consider three alternate positions, the advocate or friend, the animal, and the “intellectually disabled,” each of which points to new ways of philosophizing in the face of intellectual disability.

Companies seeking to effectively manage the ethical dimensions of their business have created formal and informal practices, including those with the labels “ethics and compliance” and “corporate social responsibility” (CSR). However, there is little research describing how practitioners who create and implement these practices understand their meaning and relationship. Leveraging a communities of practice theoretical perspective, this qualitative study proposes that these practices can be studied as artifacts of managerial learning. Thematic analysis of interviews with senior managers suggests that practices (...) have diverse meaning, with only informal relationships between them in most cases. Theoretically, this research offers a new lens through which to view compliance and CSR practices as socially negotiated, contextual, and dynamic. Practically, it suggests that there may be new opportunities for learning if managers create practices through an intentional exploration of shared meaning. (shrink)

This paper examines five groups of women that were instrumental in the emergence of the category of "feeblemindedness" in the United States. It analyzes the dynamics of oppression and power relations in the following five groups of women: "feeble-minded" women, institutional caregivers, mothers, researchers, and reformists. Ultimately, I argue that a feminist analysis of the history of mental retardation is necessary to serve as a guide for future feminist work on cognitive disability.

Based on self-determination theory, we conceptualized the effect of empowering leadership on employee’s voice via harmonious passion. This paper further explored the moderating effect of job characteristics in voice process, and proposed a moderated mediation model. Using a sample of 674 supervisor-subordinate dyads, we found that (1) empowering leadership was positively related to employees’ harmonious passion and voice behavior, (2) harmonious passion played a mediating role in the relationship between empowering leadership and employee voice, and (3) job autonomy strengthened the (...) effect of harmonious passion on employee voice, which, in turn, enhanced the mediated relationship between empowering leadership and employee voice via harmonious passion. We discuss the implications of these findings for research and practice. (shrink)

This chapter contains sections titled: Why Philosophy and Cognitive Disability? Historical Overview Discussion of Themes and the Chapters Concluding Remarks References.

This article offers an in-depth case study of a global high tech manufacturer that aligned its ethics and compliance, corporate social responsibility, and sustainability practices. Few large companies organize their responsible business practices this way, despite conceptual relevance and calls to manage them comprehensively. A communities of practice theoretical lens suggests that intentional effort would be needed to bridge meaning between the relevant managers and practices in order to achieve alignment. The findings call attention to the important role played by (...) employees who broker understanding between managers and practices, and the boundary objects used to create shared meaning and engagement. They also highlight that an organizing logic is necessary but not sufficient to align practices. This study describes the dynamics of alignment and provides a practical road map for scholars and managers interested in understanding how responsible business practices may be collectively organized. (shrink)

This Introduction to the collection of essays surveys the philosophical literature to date with respect to five central questions: justice, care, agency, metaphilosophical issues regarding the language and representation of cognitive disability, and personhood. These themes are discussed in relation to three specific conditions: intellectual and developmental disabilities, Alzheimer's disease, and autism, though the issues raised are relevant to a broad range of cognitive disabilities. The Introduction offers a brief historical overview of the treatment cognitive disability has received from philosophers, (...) and explains the specific challenges that cognitive disability poses to philosophy. In briefly summarizing the essays in the collection, it highlights the distinctive contributions the collection makes to ethics, political philosophy, bioethics, and the philosophy of disability. We hope that the richness of the topics explored by these essays will be a spur to further investigation. (shrink)

This chapter contains sections titled: The Expert or Gatekeeper Family Member or Advocate The Nonhuman Animal The “Intellectually Disabled” References.

This book develops the interplay between phenomenology as a historical movement and as a descriptive method within Continental philosophy and the arts.

These paperback editions preserve the original texts of these important books while presenting them in durable paperback editions.

Shared Musical Lives makes the case for the epistemological and ethical significance of musical experience. Music can be a source of self-knowledge and self-expression, and hence reveal important dimensions of the self to others. This knowledge - of both self and of others - has a moral force as well. Shared musical experience can transform and establish new modes of being with others, cultivate virtues, and expand the moral imagination. The term sonification (which means translating data into non-verbal audible tones) (...) provides an organizing principle for the arguments in the book.Transposing the concept into a philosophical key, this book explores two forms of sonification: first, the process by which musical experience reveals dimensions of the self and relationships with others; and second, philosophical sonification, or the critical examination of philosophical concepts,arguments, and theories in view of what musical experience reveals. These two kinds of sonification are discussed specifically in the context of disability. In this book, author Licia Carlson brings the musical lives of people with cognitive and intellectual disabilities into the foreground in order to challenge and broaden existing conceptions of disability and music and provide new ways of thinking about the philosophies of music and disability. (shrink)

Dehumanization Studies is a burgeoning field that has much to teach Critical Disability Studies and philosophers of disability. Conversely, a critical disability perspective can inform and challenge theoretical approaches to dehumanization. This paper attempts to forge a conversation between these interdisciplinary areas by exploring the phenomenon of dehumanization in relation to people with intellectual disabilities. It begins with a definition of disability dehumanization, and then explores the ways in which this form of dehumanization functions dynamically at multiple levels, drawing from (...) the history of ID and contemporary examples in moral philosophy. Ultimately it argues that it is essential to recognize the moral relevance of being human in order to challenge and prevent forms of disability dehumanization and de­fends this idea in the face of two objections (speciesism and posthumanism). (shrink)

In “The Relational Potential Standard,” in this issue of the Hastings Center Report, Aaron Wightman and colleagues propose “relational potential” as an addition to existing standards that are employed in making difficult decisions regarding life‐sustaining treatment for children with profound cognitive disabilities. They offer compelling explanations for why the expanded standard is important and why an approach grounded in an ethics of care is both necessary and justified. In what follows, I would like to explore asymmetries that emerge from their (...) account: between clinician and parent and between child and parent. “Asymmetry” is a term invoked in the context of disability, often as a marker of something undesirable, abnormal, pathological. Yet asymmetry may also be generative and worthy of attention, and in some cases, something to be embraced. My aim here is to argue that an important dimension of humility in the face of disability lies in recognizing these asymmetrical relationships and responding to them with care. (shrink)

For more than a decade, scholars and practitioners have noted the disconnection between E&C and CSR practices in US corporations and called for their alignment. There is scant literature on why this lack of alignment persists. This article applies communities of practice theory to illuminate the separate learning trajectories that the E&C and CSR fields in the US have taken over the past twenty five years, anchored by their respective professional associations. This article provides an important perspective on the role (...) that n, boundaries, ethics and compliance, corporate social responsibility communities of practice play in reifying the knowledge and competencies within E&C and CSR, and the boundaries to collaboration that exist between their managers and practices. It also calls attention to the fact that alignment is not the only alternate trajectory that these practices and their communities may take in the future, and five distinct evolutionary paths are explored. (shrink)

Ricoeur’s autobiographical works, written mainly in the final decade of his life, have proven to be a valuable if contentious resource. On the one hand, they bring into focus the tense relationship between philosophical and religious thought in Ricoeur’s corpus; on the other, they offer new insights into the broader interdisciplinary implications of his philosophy. This essay considers the recent interpretations and potential misconceptions associated with these late publications. I argue that, contrary to recent critiques, these autobiographical works are neither (...) a deviation nor denunciation of his earlier philosophical approach. Rather, they offer a context to better understand Ricoeur’s ambitious hermeneutical project of the 1970s. (shrink)